Research for Rare - Research for rare diseases

EB-Net – Network for Epidermolysis Bullosa

Network epidermolysis bullosa (EB): molecular pathomechanisms and novel therapeutic strategies (EB-Net)
The Network Epidermolysis bullosa (EB) is concerned with the causes, diagnosis, prophylaxis and treatment of EB, a group of inherited skin fragility disorders, which are characterized by trauma induced blisters of the skin and mucous membranes.
The chronic fragility of the skin has a high personal, medical and socio-economic impact on the life of the patients and their family members. So far, no causal therapy exists for EB.
The goals of the EB Network include:

From these research activities we expect important new knowledge on EB. Better understanding of key events in the ethiopathology will deliver new diagnostic and therapeutic options and improve diagnostic services, prognostics, genetic and preventive counselling, treatment and management of EB.

Projekte
Kontakt

Netzwerkkoordinatorin:
Prof. Dr. med. L. Bruckner-Tuderman
Universitäts-Hautklinik Freiburg
Hauptstrasse 7
D-79104 Freiburg
E-mail: sabine.acker-heinig@uniklinik-freiburg.de
Internet: www.netzwerk-eb.de

Geschäftsstelle:

Daniela Kirstein
Universitäts-Hautklinik
Hauptstr. 7
D-79104 Freiburg
Tel. +49-(0)761-270-66140
Fax +49-(0)761-270-67910
Email: eb-zentrum@uniklinik-freiburg.de

Publications