Research for Rare - Research for rare diseases

Expert Centers for rare diseases

Since 2009, centres that have committed themself to the treatment of patients with rare diseases have developed at University Clinics throughout Germany. Their profiles vary in part and their number is constantly increasing. Within the frameworks of the NAMSE Process (Nationales Aktionsbündnis für Menschen mit seltenen Erkrankungen, i.e. National Action League for People with Rare Diseases), criteria are being established to enable the certification of these and new centres. A list of the current centres for rare diseases can be found at

A list of the current expert centres for rare diseases can be found below