{"id":1148,"date":"2012-12-11T16:18:59","date_gmt":"2012-12-11T14:18:59","guid":{"rendered":"http:\/\/www.research4rare.de\/?page_id=1148"},"modified":"2024-04-24T13:10:58","modified_gmt":"2024-04-24T11:10:58","slug":"registries-biobanks","status":"publish","type":"page","link":"https:\/\/www.research4rare.de\/en\/registries-biobanks\/","title":{"rendered":"Registries\/Biobanks"},"content":{"rendered":"<h2>Registries\/Biobanks<\/h2>\n<p>Registries and biobanks are indispensable for research into rare diseases. They can provide new knowledge to researchers and thus be of direct benefit to the patients. Well-maintained registries can serve as an information platform for the registered patient.<\/p>\n<p>An overview of the biobanks in Germany was developed by the TMF e.V. under<br \/>\n<a href=\"&quot;https:\/\/directory.bbmri.de\/menu\/main\/app-molgenis-app-biobank-explorer\/biobankexplorer\">biobanks<\/a>.<\/p>\n<p>The following list on German registries has been supported by Orphanet Germany. For further information, please see <strong>www.orpha.net<\/strong><\/p>\n<h2>German Registries for Rare Diseases<\/h2>\n","protected":false},"excerpt":{"rendered":"<p>Registries\/Biobanks Registries and biobanks are indispensable for research into rare diseases. They can provide new knowledge to researchers and thus be of direct benefit to the patients. Well-maintained registries can serve as an information platform for the registered patient. An overview of the biobanks in Germany was developed by the TMF e.V. under biobanks. The [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":40,"comment_status":"closed","ping_status":"closed","template":"template-register.php","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-1148","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Registries\/Biobanks - Research for Rare<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.research4rare.de\/en\/registries-biobanks\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Registries\/Biobanks - Research for Rare\" \/>\n<meta property=\"og:description\" content=\"Registries\/Biobanks Registries and biobanks are indispensable for research into rare diseases. They can provide new knowledge to researchers and thus be of direct benefit to the patients. Well-maintained registries can serve as an information platform for the registered patient. An overview of the biobanks in Germany was developed by the TMF e.V. under biobanks. The [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.research4rare.de\/en\/registries-biobanks\/\" \/>\n<meta property=\"og:site_name\" content=\"Research for Rare\" \/>\n<meta property=\"article:modified_time\" content=\"2024-04-24T11:10:58+00:00\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/www.research4rare.de\\\/en\\\/registries-biobanks\\\/\",\"url\":\"https:\\\/\\\/www.research4rare.de\\\/en\\\/registries-biobanks\\\/\",\"name\":\"Registries\\\/Biobanks - Research for Rare\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.research4rare.de\\\/#website\"},\"datePublished\":\"2012-12-11T14:18:59+00:00\",\"dateModified\":\"2024-04-24T11:10:58+00:00\",\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/www.research4rare.de\\\/en\\\/registries-biobanks\\\/\"]}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/www.research4rare.de\\\/#website\",\"url\":\"https:\\\/\\\/www.research4rare.de\\\/\",\"name\":\"Research for Rare\",\"description\":\"Research for rare diseases\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/www.research4rare.de\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Registries\/Biobanks - Research for Rare","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.research4rare.de\/en\/registries-biobanks\/","og_locale":"en_US","og_type":"article","og_title":"Registries\/Biobanks - Research for Rare","og_description":"Registries\/Biobanks Registries and biobanks are indispensable for research into rare diseases. They can provide new knowledge to researchers and thus be of direct benefit to the patients. Well-maintained registries can serve as an information platform for the registered patient. An overview of the biobanks in Germany was developed by the TMF e.V. under biobanks. 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