17. April 2026
10. Rare Disease Symposium 2026 – Eva Luise und Horst Köhler Stiftung

"Breaking Boundaries: Uniting People, Knowledge and Systems in Rare Diseases"

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22. - 24. April 2026
The Translational Science of Rare Diseases – From Rare to Care V

Organisation: BMFTR research networks on rare diseases
Venue: Tutzing, Germany

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03. - 04. June 2026
European Conference on Rare Diseases & Orphan Products (ECRD) 2026

Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases

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23. - 26. June 2026
ITINERARE Rare Disease Summer School 2026

Venue: Kartause Ittingen, Warth, Switzerland
Application deadline: 26 April 2026

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24. - 25. September 2026
Die 2. Tagung für Seltene Erkrankungen der DACH-Region (Organisation: GfH)

Veranstaltungsort: Bonn

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