Coordinating Office Munich
In 2010, the research networks formed a board of speakers as decision-making and coordinating body. Prof. Dr. Rebecca Schüle, co-ordinator of the TreatHSP.net research network, is elected spokesperson, Prof. Dr. Thomas Klopstock, co-ordinator of the mitoNET research network, is elected deputy.
Moreover, the BMBF finances a coordinating office to assist the board of speakers. The office serves as a liaison between the research networks, supports the board of speakers in the implementation of its projects and acts as information platform for the research networks. It is located in Munich, Friedrich Baur Institute, Department of Neurology, LMU University Hospital, LMU Munich.
Poster R4R funding period 2023-2026
Objectives
The objectives of the board of speakers are:
- Organisation of rare disease meetings and networking events
- Collaborating with patient organisations
- Establishing national and international cooperations
- Science communication and public relations
- Support for young scientists
- Contribution to nationwide initiatives in the field of rare diseases
LMU Klinikum
Friedrich-Baur-Institut an der Neurologischen Klinik
Ziemssenstraße 1a
80336 München
Katja Franke-Rupp
Tel.: +49-89-4400 57063
E-Mail: katja.franke(a)med.uni-muenchen.de
Dr. Corinna Schultheis
E-Mail: corinna.schultheis(a)med.uni-muenchen.de
Tel.: +49-89-4400 57064